Tuesday, October 4, 2011

I'm at my whits end.....

My poor son, my poor family, UGH! That's about all that I can say right now. Little dude has been having major stomach issues for about the last three months. We are talking about diarhhea that is so bad we've had to take apart his car seat, (which was not easy at all) clean the seat and under it in our truck, we've had to throw away a ton of clothes, sheets, etc. Not to mention all the pain the poor boy has been in during this whole time.

It started out with his Dr thinking it was just a virus so we were told to change his diet, and still nothing. We were then sent to Denver (over an hr drive from here) to Childrens Hospital GI Clinic. They checked him for everything. Crohns desease, celiac desease, and other issues. They have yet to find anything. So they said that it might be from a virus that he had but his digestive system just wasn't going back to normal. So they said to add probiotics to his food once a day and to make sure he got at least one to two servings of yogurt a day. We've been doing that for over a month, and not much of a change. To say it's wearing us down is an understatement.  We are talking about a baby that is in pain off and on all the time, he wakes up in the middle of the night in wrenching pain, endless soaking and laundry, tons of diapers and wipes, and did I mention with all the laundry that keeps having to be done our water heater keeps going out. Our apartment maintenace manager has been here but they just have to keep restarting it because they can't figure it out.

This past Sunday, I was out during the morning and I got a phone call from the husband. He said I needed to come home ASAP because it was bad. Well, I've seen bad but figured it had to be dealable. I was so wrong. It was so bad, that the little dude required two baths, the blankets, stuffed animals, night clothes, sheets, etc that were in the crib were not salvagable AT ALL, not to mention the crib. It was so bad, we ended up having to tear it down and go get him a temporary toddler bed. (when we move-more info on that in Nov, he's going to get an actual twin bed). It was in every nook and crany.  Thats how bad it is.

Last night he was sleeping all great in his new toddler bed (which has been an effort to get him to do since it was such a drastic quick change) and at midnight he woke up screaming, balled up on the floor. When you pick him up or hold him he just wants to curl up and you can see he's in so much pain.

I hate feeling helpless as a mom, not being able to fix it, or at least make the pain go away. It's drianing on him, us, our family, etc. The other kids are losing attention because it's mostly spent on the baby boy, us parents are losing a  lot of sleep, and slowly losing our minds. He has an appointment Fri and I am praying each night that they can figure out what is going on with him. Everything they suggested isn't working. I have no idea what to do now. I've done research and everything it could be they've already tested him for. We shall see, but this time, I'm not taking the "Lets waits and see" game. No way in hell on this one now.

His first night in his bed, after about 2 hrs of getting him used to it

Today, his first nap where he stayed in his bed.

Miss Tan was so proud she made her bed. I've asked her if she wants me to make her a new blanket (the one with the care bears is about 2 yrs old. its brown on the other side) and she won't give it up. Not to mention the array of stuffed animals on her bed. She's come sucha long way to being such a big little girl. Oh how I love waking up to her smile every morning.

4 comments:

PrincessJenn said...

I saw you mention daily yogurt.. have you tried going the opposite way and taking him off milk (and all milk products) all together for a few weeks?
V used to have a milk allergy and it can cause terrible diarrhea and stomach cramps.
Don't know if that's something you've already tried or not.

The McCammons said...

Hey sweetheart! First hugs to you and the family. Yes ma'am we sure have done that. Took him off all dairy for a month and no difference, (to check for milk allergies) took him off fruits and breads and no difference, (test for Celiac decease). It's frustrating. We've tried all diet changes that would be possible for allergies and nothing.
Thank you ;)

PrincessJenn said...

I can't even imagine how frustrated you must be. Do they have any next steps?

The McCammons said...

As of right now Ive done all they said to do. He has an apt on Fri so holing they won't just giv up and try to help us figure this out. I was talking to a mom today in Tan's speech office. She has celiac decease but her son doesn't. Hes had diahrria for 2yrs. She said to have mine tested for cystic fibrosis of the digestive system, and that there's a formula to give him for nutrients since he's losing weight. Other than that I'm at a loss.
How's Miss V been doing? U and hubs?