So, the little one has been sick the whole time we've been home. He had an apt on Tue, and the Dr agreed with me that he looked a little jaundice. He didn't think by the looks of him it was anything to worry about. Apparently we were wrong because the tests came back that he had to have a bili-bed because he was only 3 points away from being put in the hospital.
We didnt get the bed until almost 8pm. By this time my little man was so lethargic that I couldn't get him to eat more than 2minutes without just passing out, and when we put him in the bed he was completely inconsolable. I was scared. I called the Drs office and the nurse that answered told me to deal with it until I told her he hasn't eaten a decent meal in like 7 hrs. She told me to take him to the ER. I did, and the Dr has the same crappy attitude. His levels were the same. She told me to go home, deal with it, and that was that. I told her that I couldn't get him to eat, etc and she said try harder. I freaked, I started to cry. She just walked out of the room and sent a nurse in. (the whole time I'm on the phone the Dr is out at the nurses station actually talking crap about me, like I can't hear since I have the huge room right in front of the station with just a curtain up) She was saying that maybe she should call a psych eval for me, that they don't do things for kids just because mommy can't deal. What the heck people, really. I was a scared shitless mom whose child didn't even move at all the pocking prodding or shots, and I'm not aloud to be a little emotional. Screw you lady!
Anyways.
My nurse called up to the NICU and the nurse I talked to there was so nice, so caring and understanding. Gave exact directions on what to do, told me that first and foremost we both needed our rest. His levels arent horrible, so she said to feed him a little formula after each breast feed to help him poop, which is what he needs to do to remove the bili from his system. So I did it, didn't get much sleep, but all was a little better. He has been in the bili bed for almost 4 days now, seems to be doing better. Waiting on the test results for today to see if we can discontinue this dreaded bed. He has to spend almost all day in it, and because of the light and the bed I can't leave his side. It sucks. Here are some pics from his first trip to the Drs office and him in his fancy bili-bed.
In his carseat at first Drs apt
The ER
My Little man in his bili-bed






